the fda is evil

no, seriously. it is.

i’m sure you’ve read all about this already, but just in case you haven’t:

Your genes, your rights – FDA’s Jeffrey Shuren misleading testimony under oath @gnxp

Making movies @genomeboy

Did The FDA’s Jeffrey Shuren Mislead A Congressional Hearing? @geneticfuture

Obama Admin wants to crack down on genome biz @steve sailer

call, write, email, fax your congressmen NOW! tptb don’t want you to have free access to YOUR OWN GENOME!

that’s f*cked up.

update: paul says in the comments – “Even better, email your reporter friends and have them ask some tough questions of jeff.shuren@fda.hhs.gov and erica.jefferson@fda.hhs.gov.”

good idea!

update: see also FDA’s Jeffrey Shuren Perjury Against Genetic Testing Freedom? @futurepundit and FDA’s Shuren accused of misleading Congress about Google-backed 23andMe @fdablog.

update 03/11: chris @cxlxmxrx has got a whole list of names and addresses of official sorts of people who you can complain to about all this bs. thnx, chris!

(note: comments do not require an email.)

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11 Comments

  1. I read the top link you provide. I am unclear on what is at issue here.

    Yes, the libertarian principle of the right to property would be abrogated. But I have never used knowledge of my own genome for any purpose. (I have not payed for the sequencing, I have no knowledge at all of my genome). What is the practical negative impact upon you and me here?

    Does this mean they would raid 23andMe, smash up its offices, and jail its scientists, or what? (btw, a friend purchased their service and recommends 23andme).

    Reply

  2. Does this mean they would raid 23andMe, smash up its offices, and jail its scientists, or what? (btw, a friend purchased their service and recommends 23andme).

    Yes. Exactly. The FDA has the power to order a raid with guns, among many other powers.

    Watch them do a guns drawn raid on a raw milk shop here:

    You know how they justified it? By claiming that

    a. There is No Right to Consume or Feed Children Any Particular Food
    b. There is No Generalized Right to Bodily and Physical Health
    c. There is No Fundamental Right to Freedom of Contract

    Seriously these are direct f***ng quotes.

    http://foodfreedom.wordpress.com/2010/05/09/fda-you-have-no-natural-right-to-food-health-or-private-contracts/

    http://www.thecompletepatient.com/storage/ds%20mtd%20memo%20in%20support.pdf

    Reply

  3. Yes, the libertarian principle of the right to property would be abrogated. But I have never used knowledge of my own genome for any purpose. (I have not payed for the sequencing, I have no knowledge at all of my genome). What is the practical negative impact upon you and me here?

    Half, someone in another blog made a good point. There was a thing called the Homebrew Computer Club in the late 1970s. Only weirdos and nerds thought computers would be useful for the average person. Two of those weirdos and nerds were Steve Jobs and Steve Wozniak. Who founded Apple Computer.

    Now only weirdos think genomes will be useful for the average person. The FDA is trying to stop people working on Do-It-Yourself Biology, because they want total state control over the human genome (and budget, let’s not forget about budget, oh yeah, and bribes from “traditional manufacturers”).

    Reply

  4. @paul – “There was a thing called the Homebrew Computer Club in the late 1970s.”

    that’s a really good example of what NOT stiffling creative geeks can result in. thnx!

    Reply

  5. @hail – “What is the practical negative impact upon you and me here?”

    what paul said above about the fda closing down genetics start-ups like 23andme.

    basically, tptb want to classify these genetic tests as a “medical device” and, therefore, because of that little definition of theirs, you would be forced to go through a doctor to get your genome (or, as it stands now, some of your genome) typed.

    why? cui bono?

    one group that backs this — doctors. there are too many doctors out there (just look @ the ama’s stance on this issue) who do NOT want ordinary folk to have access to their genome. (there are plenty others who think it’s great.) doing so takes away all their magic (and lots of billing potential!), ya know? it’s bad enough that patients google their symptoms and walk into their offices with a list of possible diagnoses! the horror!

    i got my genome partially typed (one of the first things i did when such services became available) because — well, because i’m a geek, i guess! i mean, i can’t understand why everybody wouldn’t want to get their whole genome sequenced asap! how cool is that?!

    i got my half a million plus snps typed kinda-sorta with diseases in mind and kinda-sorta with ancestry in mind, but MOSTLY with just wanting to see how i’m built in mind! what could possibly be f*cking cooler than knowing your own genetic code?!?! (inter-galactic travel maybe….)

    i got my half a million plus snps typed because THEY’RE THERE. (~_^)

    the fda wants to take away my ability to do that freely, and that s*cks.

    Reply

  6. i also betcha that, in the back of tptb’s hive-mind, they dread the scenario where mr. & mrs. white get their genomes typed and then find that, gee, there are a lot of really interesting differences between their sequences and the lopezes down the street … and latoya and her family’s … and the goldsteins … hmmmmm ….

    wouldn’t want THAT sort of thing to become common knowledge!

    Reply

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